National Fragile X Awareness Day
National Fragile X Awareness Day is held each year on July 22nd to honor those affected by Fragile X syndrome. The day also raises funds for study, education, and awareness.
#fragilexawarenessday
Fragile X syndrome is a result of the FMR1 gene mutation and is the most common form of inheritable intellectual disability. Although a person may have the gene mutation, it affects more men than women, and although a person has the gene mutation, there are other common signs. Many that do not have signs may have mild or severe symptoms. Physical, educational, and behavioral signs may appear, and they can differ between males and females. Women tend to have similar but milder signs or none at all.
- Attention Deficit Hyperactivity Disorder, Attention Deficit Hyperactivity Disorder, autism, hyperactivity, poor eye contact, sensory disorders, hand-biting or flapping, aggression are all examples
- ilities are learning disabilities are learning disabilities
- Elongated face and ears, as well as a long neck and ears
- Soft skin
- Large testicles or Macroorchidism are the product of a large testicles, whether Macroorchidism or large testicles
- Ear, feet, joints, and palate are all affected by connective tissue disorders impacting ears, feet, joints, and palate
- Very social
Testing and treatment are available, but more research is required because there is no cure. The day hopes to advance the quest for a cure by raising awareness. National Fragile X Awareness Day takes place during National Fragile X Awareness Month to highlight the importance of helping families and finding a cure.
How to celebrate national vulnerable x awareness day by observing national fragile x awareness day
Learn more about Fragile X. Here are some ways to support families affected by Fragile X.
- Download and print Fragile X awareness cards for families, download and print Fragile X awareness cards
- Donate to support research
- Attend webinars or seminars about Fragile X
- On social media, the host of an event is announced
- A fundraiser can be organized by a group of people
- Join a support group
- Share your experiences
- Add a frame to your social media profile. Add a frame to your social media profile
If you're participating, be sure to post #FragileXAwarenessDay on social media.
The national fragile x awareness day is the first national fragile x awareness day in history
The United States Senate passed a bill naming July 22nd National Fragile X Awareness Day in 2000. The day's resolution was also passed by the U.S. House in the following year. Both resolutions urged the day. The National Institutes of Health, the CDC, and researchers from around the country and around the world are among the quests to find a cure.
