International Thalassaemia Day
International Thalassaemia Day, May 8th, honors thalassaemia patients who are no longer with us every year. It's also a day to honor the patients who are alive and striving for a better quality of life.
Thalassaemia is a genetic hemoglobin disorder. Hemoglobin is the iron-rich protein found in red blood cells and is found in Hemoglobin. Hemoglobin is used to transport oxygen to the blood. A person with thalassaemia has less than average hemoglobin levels. Multiple blood transfusions are usually needed, making life very difficult. Any people with the disease require a blood transfusion every two weeks.
According to the most recent estimates, around 280 million people around the world have thalassaemia. About 439,000 people have a severe case of the disease. Thalassaemia is most common among the following ethnic groups: Thalassaemia is most common in the following ethnic groups:
- Italian
- Greek
- Middle Eastern
- South Asian
- African
Thalassaemia is a common disorder that can be present in the body. Anemia, exhaustion, dizziness, shortness of breath, an elevated risk of infections, and abdominal swelling are all typical signs. Some people with thalassaemia also have too much iron in their body. When the body has too much iron, it can damage the heart and liver.
Children with this disorder often have a difficult time learning. They will continue to grow slowly as a result. Children with thalassaemia may also have skull bones that are not shaped properly. These signs appear within the first two years of life for the majority of children.
How to celebrate #internationalthalassaemiaday
Every year, the Thalassaemia International Federation (TIF) organizes various activities to raise money for thalassaemia. These initiatives are designed to fuel discussions centering around the year's theme. Find out how you can support the TIF's work if you want to participate. You can also learn more about thalassaemia and other hemoglobin disorders, or donate blood. #InternationalThalassaemiaDay is a worldwide recognition of this day.
History of the international thalassaemia day has influenced the day's illustrious thalassaemia day
In 1994, Panos Englezos, the president and founder of TIF, established International Thalassaemia Day. George, his son, who died in thalassaemia, was the subject of the day. Each year the TIF develops a special theme for the day. The following themes have been included in the most recent themes:
The dawning of a new era of thalassaemia in 2020: the dawning of a new age of thalassaemia: it's time for a global effort to make novel therapies available and affordable to patients
Universal access to quality thalassaemia healthcare services in 2019: Building bridges for patients and patients. Thalassaemia past, present, and future: Documenting progress and patients' needs around the world. Get connected: Get connected: Get connected: Share knowledge and experience for a better tomorrow in thalassaemia. Access to safe and effective drugs in thalassaemia as of 2016.
