International Ataxia Awareness Day - September 25
Mon Sep 25th

International Ataxia Awareness Day

International Ataxia Awareness Day, which takes place every year on September 25th, sheds light on this rare disease. The day also inspires Ataxia companies and individuals around the world to take action in the search for a cure.

Ataxia is defined as the loss of complete control of bodily movements. Ataxia is a degenerative disease of the nervous system in the medical world. Poor coordination, a tendency to stumble, difficulty with fine motor tasks, and changes in speech are all typical signs. The condition is caused by damage to the cerebellum. The cerebellum, a fist-sized portion of the brain stem, controls muscle coordination.

The cerebellum is affected by a variety of conditions:

  • Stroke
  • Tumor
  • Cerebral Palsy
  • Brain degeneration
  • Multiple sclerosis
  • Infections
  • Vitamin deficiencies

In some instances, the cerebellum is damaged by alcohol abuse or certain medications. Ataxia comes in several forms. Spinocerebellar ataxia (SCA) is hereditary, according to one such group, spinocerebellar ataxia (SCA). There is no known reason for ataxia in those with ataxia. It is idiopathic ataxia when a doctor is unable to determine the cause of the illness.

In the United States, this rare disease affects 150,000 people. Ataxia affects 26 out of every 100,000 children worldwide, and there is no cure for ataxia. However, signs can be controlled, but symptoms can be managed. Often, medications, physical therapy, and occupational therapy are all used to treat symptoms. Many people who lose mobility as a result of ataxia may need a mobility device, such as a walker or wheelchair.

Ataxia patients have a shorter life expectantly. This is particularly true for those who have ataxia as a child or young adult. Some people with ataxia have lived into their 60s and beyond, while others with ataxia have lived into their 60s and beyond.

How to celebrate #ataxiaawarenessday on a daily basis

Various activities are planned for this day by the National Ataxia Association. Ataxia is a disease that affects people. These include lectures and informational seminars to inform others about ataxia. People affected by ataxia are encouraged to share their personal experiences with others. This is also a day to start preparing for the Walk N' Roll to Cure Ataxia fundraiser, which takes place each fall.

You can participate by posting #AtaxiaAwarenessDay on social media.

The international ataxia awareness day is the first in history to recognize the day

The National Institutes of Health (NIH) cosponsored the International Friedreich's Ataxia Conference in 1999. The Office of Rare Diseases and the Ataxia Research Alliance (FARA) were among the conference's other participants. On September 25, 2000, the conference served as the springboard for the first International Ataxia Awareness Day. Each year, the National Ataxia Foundation (NAF) coordinates and promotes the festival. The NAF was established in 1957 and is headquartered in Minneapolis, MN, and is headquartered in Minneapolis, MN.