World Duchenne Awareness Day - September 7
Thu Sep 7th

World Duchenne Awareness Day

Every year on September 7th, World Duchenne Awareness Day honors infant boys who live with Duchenne Muscular Dystrophy (DMD). It's also a day to raise concerns of this genetic disorder.

1 in every 5,000 boys are born with Duchenne Muscular Dystrophy (DMD). Progressive muscle degeneration and weakness are typical of this genetic disorder. Muscle degeneration is caused by a combination of a protein called dystrophin. Dystrophin is the protein that helps muscle cells maintain their shape. This protein is also lacking in the brain for those who have DMD. Children with DMD often have learning difficulties and behavioral problems as a result of their autism.

Girls can also be carriers of this disease, but only infrequently affected girls are expected to be. Boys are more likely to suffer from the disease. DMD also affects boys more severely.

DMD has several common signs such as:

  • Frequent falls
  • Trouble getting up
  • Walking and running are both difficult and running
  • Abnormal gait
  • Large calf muscles
  • ilities are learning disabilities are learning disabilities
  • Heart problems

There is no such thing as a cure for DMD. Corticosteroid therapy is the only safe treatment for DMD. Prednisone daily treatments help muscle endurance and function. The development of muscle weakness also slows as a result of Prednisone.

Certain types of drugs can also help with symptoms. These therapies include range-of-motion exercises, braces to keep muscles tight and flexible, and the use of mobility aids, such as wheelchairs and walkers. Oxygen therapy may be required as the disease begins to weaken the respiratory muscles.

The life expectancy of those born with DMD has increased over the years as a result of these types of treatments and therapies. Boys with DMD will not be expected to see their teenage years at one time, at least. Now, however, those with DMD will most likely reach their 30s, 40s, and 50s.

How to celebrate #worldduchenneawarenessday

Learn all you can about DMD in order to participate in this day. If you know someone with DMD, please tell them about their experience. orld Duchenne Organisation by donating to the World Duchenne Organization. In addition, you can also advocate for those with DMD and help raise concerns of the condition. #WorldDuchenneAwarenessDay is a hashtag on social media. Be sure to post this day on social media with #WorldDuchenneAwarenessDay.

The world duchenne awareness day is the first in history

DMD's first diagnosis was made over 150 years ago. However, it has taken many years to fully comprehend the effects of this disease on the individual with DMD, as well as their families. Elizabeth Vroom and Nicoletta Madia founded the first World Duchenne Awareness Day in 2014 to raise money, raising hopes. Both of them are active members of the World Duchenne Organization, and both of them are active members of the World Duchenne Organization. Since then, the day has risen to become a worldwide movement, with participants from around the world.